14 In Caylin/ Caylin's Cure/ Type 1 Diabetes

Not alone

You know how they say life can change in an instant? Well, I never doubted that for a second. I hoped I would never have to have one of those moments in my life, but in reality, I think we ALL experience one of those moments at least once in our lives, unfortunately. It does knock the wind out of you. It does make you drop to your knees … and pray. It does change your life. Oh, and yes, it does suck, too. But you know what else I found that lies hidden beneath all of that fear, sadness, heartbreak and uncertainty? Hope.

One year ago TODAY I had that life-changing moment. One year ago today, my sweet daughter, Caylin, was diagnosed with Type 1 diabetes. Did I see it coming? No. Was I scared? You bet. Did I cry? Oh yes, and sometimes I still do. But I also have clung on tightly to my faith and I feel God’s presence with me as my family and I walk through this new “normal” for our family and our daughter.

Even before this diagnosis, I was SO stinkin’ proud of my daughter. She has always had a kind heart, gentle, giving spirit and is just an overall great, great girl. But after seeing her bravery, resilience, positive spirit, her spunky “I can do it” attitude and the way she handles how diabetes interrupts her life ALL of the time –  I am BEYOND proud of her. I wish I was more like her. I admire her SO much.

My sweet girl gets four shots a day – one right after she wakes up (it’s a long-lasting insulin) and then one shot before each meal (this insulin covers the food she eats). Since she’s not on the pump (and doesn’t want to be anytime soon) if she were to eat something in between meals, she’d need another shot. She gets her finger pricked 7-10 times a day. I have to measure EVERYTHING she eats. I used to own just one set of measuring cups – now I own 5 sets and a kitchen scale. Does she complain? Of course she does every now and then – she’s 6, but definitely not as much as I would. Does she get mad? Sure she does. I hear, “Why do I have to have diabetes, Mom?” every now and then. Breaks my heart. But more than anything she is just Caylin – the sweet, happy-go-lucky, silly girl that she has always been. The girl she was a second before her diagnosis and the second after. The diabetes can get her down at times – it can be a bit of a roller coaster ride of emotions and days – but I always see her smiling and enjoying the ride for what it is – a ride that she knows she can’t get off of, but a ride that she knows she’s not riding alone.

Just the other night when I was tucking her into bed, she brought up her diabetes (that’s normally when she will) and in the stillness of the night I could see that she was scared and sad about it. I hugged her tightly and whispered into her ear, “You are not alone in this.” Her little eyes welled up and then both of our tears came and we hugged again and quietly cried together. After about a minute I looked at her and told her how much I loved her and how proud I was of her. Then I gave her a butterfly kiss (we rubbed noses) and she smiled big and everything was OK again. Those moments are hard, but much needed I believe. 

God gives me those little moments, too. I’ll be having a hard day and then I’ll feel His presence and I’ll have a peace wash over me or a strength come about that I never knew I had. I know it’s God telling me that “You are not alone in this.” I am thankful for those moments when I can remind my sweet girl of that and when I can feel my sweet Jesus remind ME of that.

I know one day she won’t remember much about being newly diagnosed or her life early on with Type 1. Unfortunately she’ll probably never remember a life BEFORE diabetes. I wonder if she’ll remember the fear or worry in my eyes or in my voice at times as we travel down this road together. I hope not. I do hope she always knows how much we love her and how despite the fact that diabetes has entered our lives and changed it, that God’s hand is in it and He has a purpose and plan for it all.

She is such a blessing to our family. I know she will make a difference in this world. I knew it before diabetes and I know it still. And most importantly I KNOW we are not alone in this. Nope, we are not alone.   ♥

Please go HERE to read more about Type 1 and to make a donation in Caylin’s name. Thank you.

  • Nichole
    March 2, 2012 at 7:56 am

    Wowee. This is so beautifully and honestly written, K! I teared up reading the bit about bedtime the other night…I simply can’t imagine what she goes through…what you go through as her mama. But, what a comfort it is to know the Lord is RIGHT there with you guys through it all! I’m not happy she has diabetes, but I am happy with you’ve chosen to “deal” with it by choosing happiness and a positive attitude as much as humanly possible. I love you all SO much! Many big hugs to you all today!

  • tara pollard pakosta
    March 2, 2012 at 8:00 am

    this is sooooo beautiful! with you and Caylin, you CAN and ARE making a difference in the way people see diabetes and helping with research by raising money. That’s how God uses it and people like YOU for GOOD! I am so PROUD OF YOU!
    tara

  • Nancy L.
    March 2, 2012 at 8:25 am

    love your story of being strong and at the same time crying, its ok GOD is by your side!!

  • Lisa Goren
    March 2, 2012 at 8:36 am

    What a beautiful story :) I have recently discovered your blog and really enjoy it!

  • Lianna
    March 2, 2012 at 9:58 am

    It’s so sad what little children have to endure, and yet, they always have such a great outlook on life…with very little complaints! If only adults could be so carefree. Truly an inspiring story!

  • Leighann of D-Mom Blog
    March 2, 2012 at 10:53 am

    Happy D-anniversary, Caylin!

    I hope you are having delicious cupcakes tonight to celebrate a year of living, and living well, with diabetes.

    xoxo
    Leighann

  • Jennifer
    March 2, 2012 at 11:21 am

    So beautifully written. Reading your story made me tear up thinking of ours. Your daughter is so beautiful and so brave and you are right to be so proud! Always know you are not alone. We are all in this together! Enjoy your 1 year! xo

  • Sil
    March 2, 2012 at 12:15 pm

    You and your little princess are so brave! Thank you for sharing your story…and please know that you are not alone. God is always by your side!

  • Cindy Groh
    March 2, 2012 at 1:18 pm

    Wow! You are an amazing family. God Bless.

  • sarah
    March 2, 2012 at 4:00 pm

    You never expect this type of thing to happen to YOUR child. It’s so hard! In the short time I’ve known you though, I’ve learned that you are a very strong, amazing mommy.
    In comparing our stories, it’s hard to say if it’s easier to be diagnosed with something at birth, or to get to live a healthy “normal” life for a while first. I do know I don’t look forward to the days ahead when I’m asked the types of questions you hear.
    I don’t think parents of healthy kids understand just what the parents go through either, that it’s a LOT of hard work. Always done without a second thought of course.
    Caylin, what a special little girl. So brave. I so badly wish she wasn’t having to experience these things. I hope you guys can do something special together today.
    I actually remember reading N’s blog post about Caylin being diagnosed. It seems like so long ago. I’m so glad I got to meet you in that time! You are both an inspiration. I’m so glad you posted this, the positive outlook and the hope, all of it is a much needed lesson for me.
    Hugs to you both!

  • Jana
    March 4, 2012 at 11:33 am

    This is beautiful Kristina. So honest and heartfelt. And you are right — you aren’t alone. :-)

  • LeiShell
    March 4, 2012 at 4:09 pm

    My nephew who is 10 has type 1 and it is a huge struggle. But he is amazing about it. He knows how many carbs are in everything and how to do his own shots, finger pricks and everything. It has challenged my sister and him at times, but they way they approach it is so amazing…it’s just routine and they deal with it so positively. I know she is still young and that is the hard part…but as she ages she will be able to do all of that. I wish it didn’t exist but thank God that modern medicine helps manage it. You are a tough mom and you have raised a tough daughter…

  • Kristen
    March 4, 2012 at 9:56 pm

    I just found your blog on Circle of Moms. What a truly touching and beautiful post. What a beautiful daughter.
    I voted for you on the Circle of Moms contest in the hopes of filling up their list with DIY homeschoolers!

  • Stacy
    January 13, 2013 at 7:02 pm

    thank you for sharing your story. my son parker who is now five was diagnosed at 25 months old. even though it’s been three years (i still can’t believe it’s been 3 yrs) i find comfort in reading other d-mama stories. please keep sharing your journey!