7 In Happiness

Holland is lovely, too.

I’m not going to lie. I have my bad days when it comes to the diabetes diagnosis my daughter received. Most of the time I remain positive, thankful and don’t look back, but there are other times when I catch a glimpse of something that MIGHT have been – something that USED to be a certain way or an old memory creeps up on me without warning and I lose it into a ball of tears. I pray … A LOT. That’s nothing new though – I always pray a lot – I just have something new to pray about. I know God hears me and comforts me. I can feel Him. I see a difference in my attitude and daily life and the way I view things. That “goodness” that I want to be sure I find in everything seems to have an underline and BOLD typeface because of Him. He helps me see the goodness AND reminds me of the beauty of life still.

One way God has helped me is by already bringing such wonderful people into my life because of the diagnosis. Everyone knows that there is safety in numbers. It helps to be surrounded by people who are going through similar circumstances and I am blessed to have received emails, sweet words of encouragement and prayers from people I have never met before, but that know what we are going through and how hard it is. I am thankful for them. Each and every one of them.

I sometimes wish I had the most perfect words to describe how all of this makes me feel. And then it happened. I read the following words and it resonated within me so much. It is EXACTLY how I feel. It’s perfect. So I am sharing it with you here.

Thank you, Joanne, for posting the following words on your blog. I appreciate you and I am so sorry that we met because of the diagnosis our sweet daughters share. BIG hugs.
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I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around and you begin to notice that Holland has windmills and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away because the loss of that dream is a very very significant loss.

But if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

c1987 by Emily Perl Kingsley

I’ve learned already, even in this short amount of time, that Holland is lovely, too. Life is beautiful no matter where you are.

  • ~Amy
    April 27, 2011 at 1:30 am

    This poem was shared with me a very inspiring mother of a child with a rare neurological condition. There are days separating him and my little girl and the differences were just so pronounced to me as I watched this sweet, amazing little boy, still unable to walk, speak, drink from a cup, etc.
    Your family will be in my prayers.

  • Danielle
    April 27, 2011 at 6:10 am

    Praying for you friend:)

  • Miranda
    April 27, 2011 at 10:34 am

    If you ever want to go to Italy come to visit my family instead, we are in Holland and it is beautiful. Thinking of you and your family!!!!

  • Marie
    April 27, 2011 at 1:05 pm

    what a beautiful analogy. thinking of you lots friend…

  • Rebecca
    April 28, 2011 at 1:55 pm

    Wow.. Teared up a bit. This is exactly how I feel…

    My daughter will be turning 1 in just a couple of weeks. She was diagnosed at birth with a rare genetic disorder (1 in about 20,000 births). No signs were shown during my pregnancy (didn't have genetic testing done as their were no complications that we saw), so as I was scared of being a first time mom, I was expecting a healthy little baby on the day of delivery. What a blow it was to find out my child will have to be on medicine her entire life just to stay alive. She takes steroids to survive, much like a diabetic needs insulin.
    One 3 times a day, another twice a day.

    It has all become routine now, but those first couple of months I didn't know how I could do this for the next 18+ years.

    Although I have not met anyone locally that has the same disorder as my daughter, I have found support online from other mothers with affected children as well as affected adults. It's so comforting to talk to people who know what you are going through.

  • Joanne
    April 29, 2011 at 3:00 am

    Thanks for the shout out. I love that story. It hits so close to home.

  • UpsideDown Kate
    May 2, 2011 at 2:06 am

    Thank you so much for sharing the words by Emily Perl Kingsley. I have never found that before but it's such a perfect description. Holland is lovely, but somedays the heart wishes for Italy…